PPP Wiki

This page was created in an effort to preserve all the useful information, knowledge and experience shared within the PPP2R5D community.  All information included in PPP-WIKI are based on families' opinions and experiences.  The intent of this page is not to give medical or functional advice, but to gather and keep valuable information shared among the PPP2R5D community.  


The hope is to provide a resource for families through their journeys where they can find answers to daily struggles and questions raised by other parents.  We are dealing with a rare syndrome with very little guidance outside of the community. This makes the parents the real experts on the subject.


Hope you find this page helpful on your journey.


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